Support for all the family
The charity Contact have written some useful leaflets to help support and encourage family members. There is also a leaflet for supporting relationships between carers and a leaflet for siblings of a disabled child,
Having a disabled child affects all members of a family. No matter if you are a new parent, or an experienced one – everyone can react in different ways to the news that their child has a disability or medical condition. As a father of a disabled child you will have to adapt to a new and sometimes challenging set of circumstances.
This Contact guide will help you learn more about practical information you may need and help you understand how other fathers have experienced having a disabled child.
Having a disabled child in the family has an effect on everyone, not just parents and siblings. As a grandparent, you may sometimes find yourself in an unfamiliar and sometimes difficult situation. The child’s parents, siblings and other relatives may look to you for information and support. This may happen at a time when you are trying to come to terms with the news that your grandchild has a disability.
We hope that this Contact guide will help you identify with some of the feelings and needs of other grandparents. You will also find a few ideas to help you if you are unsure how best to support the parents of a disabled child.
Relationships matter. When they work well they are a vital source of support and protection against life’s stresses and strains. All relationships go through periods of change and challenge. Parents caring for a disabled child have to adjust to new roles, and may have different expectations about their child. They also have to cope with significant emotional, social, physical and financial pressures.
Many parents find these experiences bring them closer together and make their relationship stronger however some couples are overwhelmed by the experience and struggle to stay together. This Contact guide offers information and ideas to parents of disabled children to help looking after their family relationships. The original guide was developed with help from over 2,000 parents who took part in a survey about how their relationship has been affected by caring for a disabled child, and One Plus One, the UK’s leading relationships research charity and creators of thecoupleconnection.net
This Contact guide is about the brothers and sisters of children who have a disability or long-term illness. It is written for parents and for those working with families who have a disabled child. Every child and family is different and not all the points mentioned here will apply to every situation. The issues discussed are those brought up most often by parents and brothers and sisters themselves.
Contact supports families with disabled children across the UK. Whatever the condition, whenever they need us, wherever they are.
We provide information, advice and support. We bring families together so they can support each other. We campaign to improve their circumstances, and for their right to be included and equal in society.
One in 20 children are born with a disability and almost all are cared for at home by their families. Contact is here for all of them.
- We have a national freephone helpline staffed by expert advisers who can advise on education, benefits, getting a diagnosis and sources of help.
- We provide up to date medical information on over 400 health conditions and disabilities, including rare conditions.
- We connect families in their local communities at family events and parent workshops.
- We help families find the best local support networks.
- We support families to make a difference locally through our work with parent carer forums.
- We campaign to end the poverty, disadvantage and isolation experienced by families with disabled children across the UK and raise awareness of these issues.